Strand 1 – Core Costs Funding
This funding strand is designed to support the resilience of those small charities working closely with the genetic condition community.
This year, the charity is offering single year grants of up to £5,000 to support frontline genetic condition specific charities in the UK to:
- Be empowered, strong and sustainable.
- Be flexible and responsive to changing circumstances.
- Invest in organisational development, systems and processes.
- Strengthen their governance.
- Effectively demonstrate the impact that they make.
- Collaborate, share expertise and resources.
The funding will contribute towards the organisation’s running costs. These could include, for example, support costs, management costs, communications, income generation, administration costs, governance activities, general overheads or other spending that is not project specific.
UK registered charities, based and delivering their work in the UK, with an annual income of between £20,000 and £300,000 can apply. Applicants must be a genetic condition specific charity or a charity whose beneficiaries are solely those with genetic conditions and/or their families. In addition, they must be at least 18 months old and have published their first set of annual accounts.
The deadline for applications is 14 March 2025.
Strand 2 – Project Funding
This year, the charity is offering project grants of up to £20,000 to be spent within one year to support projects that:
- Create added support networks or develop existing ones.
- Inform and empower individuals living with a genetic condition and their families and carers.
- Address a key transition point (eg point of diagnosis or transition to adult services or bereavement).
- Improve the physical, mental or emotional wellbeing of affected individuals, families and carers.
- Enable knowledge, awareness, skills or attitudes to be acquired that are then applied so that those with a genetic condition and their families are supported, valued and included.
- Engage with diverse and marginalised communities who are also living with a genetic condition to identify and challenge policies, practices and perceptions that contribute to health inequalities.
UK registered charities that are based, and deliver their work, in the UK with an annual income of less than £1 million can apply.
The project funding is restricted to the delivery of a defined set of activities and the costs involved in delivering those activities including staff costs and a percentage of overheads (up to 15%).
The deadline for applications is 14 March 2025 (23:59).